The FTD Brothers-"Be sure to tell them"

This man knows he's going to get dementia, so he's strapped a fridge to his back and he's running a marathon. Beyond the finish times, the race fits, anything you can see or quantify, every single person running this marathon has a story, and this is one of the most remarkable ones. Jordan Adams is running the London Marathon today with a fridge on his back the entire way. To get your attention? Yes, for very good reason. Jordan's mum was diagnosed with early-onset frontotemporal dementia when he was just 15. By the time he was 20, she could no longer walk or speak. She died just aged 52. Jordan then found out he carries the same gene, meaning he will develop the same disease, likely in his early 40s. So will his brother, Kian. But instead of letting that become the end of the story, they've made it the beginning of one. They're called the FTD Brothers, and their goal is to raise £1 million for dementia research before dementia takes their lives too. They've already raised over a quarter of a million pounds before this race even started. And when Jordan finishes this marathon today, he is getting on a plane to Dublin to run 33 marathons in 33 days. Back where his mum's roots are, and where the research that finally gave their family answers was done. So when you see someone running the marathon today, whether they are wearing a charity vest, a silly costume or not, every person running out there today is running towards something. And every single one of them has a story. And if you're someone who thinks your finish time is the most important thing about running, I am literally that person. I encourage you to spend just five minutes with Jordan. He's running towards something he can't outrun. But hopefully he is also running towards a better future for others in his position because he is out there running. And so will plans I once have made. I'll lose the right to work or drive, forget what makes me feel alive, and slowly, cruelly, I'll decline, each part of me no longer mine. My hands will twist, my legs will fail, my voice reduced to silence frail. I need a tube to help me eat, I'll lose all strength, admit defeat, and though they'll say it's natural, still, there's nothing natural in this will. I will lose everything that makes me, me, my spark, my soul, my dignity. This life I've built will come undone, stripped of quality, warmth, and fun. And worst of all, what haunts my sleep is who this illness comes to reap, a wife who stood by every vow, a child who won't remember how. I laughed, I danced, I held them tight before I vanished into night, but today I've reached my 30th year, and that alone deserves a cheer. I may have just one third to go, but I will live and let it show, so much so that when I'm gone you'll feel my fire still burning on. So while I've still got breath and flame, I fight to honor my own name. I run for those who've gone before, for those who can't, something more. Yes, I'll leave this world to FTD, but it won't steal the heart of me. I'll shine so bright while I am here, that when I'm gone I'll still feel near. When the time comes, when I'm no longer who I was, when silence falls where fire once was, it's up to you to share our name, to tell our story, to light the flame. Not as boys who chase the glory, but as brothers bound by a bigger story, who ran through pain, through loss, through fear, to chase a cure and bring it near, to save the lives of those to come, so no more hearts come undone. So when you see me fade from view, be sure to tell them I ran for them, but I did this for you. This man knows he's going to get dementia, so he's strapped a fridge to his back and he's running a marathon. Beyond the finish times, the race fits, anything you can see or quantify, every single person running this marathon has a story. And this is one of the most remarkable ones. Jordan Adams is running the London Marathon today with a fridge on his back the entire way. To get your attention? Yes, for very good rea